Love Like Livvy

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Love Like Livvy

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In honor of Livvy Rue Borden, from 4p-8p, Pizza Ed in Hartselle, Alabama, is hosting a fundraiser benefiting Smash SMARD and the mission to raise awareness and fund research for SMARD1 (Spinal Muscular Atrophy with Respiratory Distress Type 1). If you've ever wondered why this cause matters, I invite you to listen to my conversation with Kayleen and Drake Borden. Kayleen and Drake share the beautiful story of their daughter, Livvy Rue, who was born on November 21st, 2025, and spent 140 precious days filling the lives of those around her with love, laughter, and joy before passing away on April 10th after a courageous battle with the ultra-rare genetic disorder SMARD1. Their love for Livvy has become Love Like Livvy, an effort to one day establish a nonprofit foundation that will support families affected by SMARD1 through travel assistance, housing, research funding, and advocacy for newborn screening. I hope you'll take time to listen, learn about Livvy's incredible legacy, and, if you're in the Hartselle area this afternoon, consider supporting the fundraiser at Pizza Ed. Real stories. Real people. Real impact. News That Unites!™️

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