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AiArthritis Voices 360 Talk Show

AiArthritis Voices 360 Talk Show

By: International Foundation for Autoimmune & Autoinflammatory Arthritis
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About this listen

On Sunday, join International Foundation for AiArthritis and fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most in the AiArthritis community.Copyright 2019 All rights reserved. Hygiene & Healthy Living
Episodes
  • Ep 120: Why Sleep Is So Hard with Autoimmune Disease (and What Actually Helps)
    Apr 5 2026

    Sleep problems are one of the most common and most frustrating experiences for people living with AiArthritis diseases. In this episode, Eileen Davidson breaks down why getting a good night's rest can feel nearly impossible when you're living with an AiArthritis disease, and shares what has actually helped her along the way.

    Eileen explores the many reasons sleep is so disrupted by AiArthritis diseases, from pain and stiffness to the role that chronic inflammation plays in interfering with the body's natural sleep cycles. She offers an honest, personal reflection on what sleepless nights really look like from a patient's perspective and why this issue deserves more attention in conversations about disease management.

    Whether you're lying awake wondering if anyone else understands what you're going through, or you're looking for practical steps to try tonight, this episode offers both validation and real, actionable guidance from someone who lives it every day.

    Episode Highlights:

    • Why sleep is uniquely challenging for people living with AiArthritis diseases
    • The connection between inflammation and disrupted sleep
    • A personal reflection on what sleep struggles really feel like
    • Small, realistic habits and strategies that can actually make a difference

    Links & Resources
    • Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
    • Donate to Support the Show: www.aiarthritis.org/donate

    Follow AiArthritis on all social media platforms @IFAiArthritis

    Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    Connect with our Co-Hosts:

    Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.

    Connect with Eileen:

    Twitter: @ChronicEileen

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    27 mins
  • Ep 119: What I Wish I Would’ve Known After Diagnosis
    Mar 1 2026

    A new diagnosis can bring relief, fear, and uncertainty all at once. In this episode, Leila and Deb share advice from the AiArthritis community on what they wish they had known right after being diagnosed with an autoimmune or autoinflammatory arthritis disease.

    Leila and Deb explore the importance of trusting your body, especially when tests are inconclusive or symptoms are dismissed. This episode highlights how self advocacy, second opinions, and clear communication with your care team can shape your experience. Community members also reflect on the emotional side of diagnosis, including grief, patience, and the mindset shift that comes with learning to live with chronic illness.

    Whether you are newly diagnosed or supporting someone who is, this episode offers validation and practical guidance for navigating the early stages of the patient journey.

    Episode Highlights:

    • Why trusting your body matters, even when tests are unclear
    • How self advocacy and second opinions can change your care experience
    • The emotional impact of diagnosis and the importance of grace and patience
    • Practical tools like symptom tracking, rest, and shared decision making to support long term management

    Links & Resources
    • Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
    • Donate to Support the Show: www.aiarthritis.org/donate

    Follow AiArthritis on all social media platforms @IFAiArthritis

    Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    Connect with our Co-Hosts:

    Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

    Connect with Leila:

    • Tiktok: @Lupuslifestyle.lei

    Deb Constien is a medically retired Registered Dietitian and a Representative for the AiArthritis with Rheumatoid Arthritis. Deb is also on the Advisory Council for WREN- Wisconsin Research Education Network and a Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning.

    Connect with Deb:

    • Facebook: @deb.majcherconstien
    • Instagram: @debconstien
    • Twitter: @debconstien
    Show More Show Less
    41 mins
  • Ep 118: More Than a Smile: Oral Health in AiArthritis Diseases
    Feb 1 2026

    Oral health is often treated as optional or cosmetic, but for people living with AiArthritis diseases, it can have a real impact on pain, fatigue, nutrition, and quality of life. In this episode, Leila and Bridget explore why oral health deserves a place in routine disease management and why so many patients are never told their symptoms are disease related.

    The episode looks at how autoimmune conditions and common medications can affect the mouth, from dry mouth and gum inflammation to delayed healing and increased infection risk. It also breaks down the connection between oral health, the immune system, and systemic inflammation, helping patients better understand why issues can show up even when oral hygiene is strong.

    Join us on this episode to hear practical, gentle strategies for protecting oral health when saliva is reduced or sensitivity is high. The discussion emphasizes adaptation over perfection and reinforces that oral health challenges are not personal failures, but part of living with complex chronic disease.

    Episode Highlights:

    • Why oral health is often overlooked and why it matters in autoimmune disease
    • How inflammation, medications, and reduced saliva affect the mouth
    • The link between oral health and conditions like Sjögren’s, rheumatoid arthritis, lupus, and scleroderma
    • Gentle, realistic strategies to protect teeth and gums without causing more harm

    Links & Resources
    • Go With Us! To ACR 2025: Oral Health: https://www.youtube.com/watch?v=q5XlwG4cNXo
    • See more about co-existing conditions, disease management & more www.aiarthritis.org/patientjourney
    • Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
    • Donate to Support the Show: www.aiarthritis.org/donate

    Follow AiArthritis on all social media platforms @IFAiArthritis

    Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    Connect with our Co-Hosts:

    Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

    Connect with Leila:

    • Tiktok: @Lupuslifestyle.lei

    Bridget Dandaraw-Seritt founded a patient based organization that advocates for access to compassionate care and provides community support. She’s a published author on therapeutic cannabis, presents at medical conferences, and is engaged in the policy making process.

    Connect with Bridget:

    Facebook: Advocates for Compassionate Therapy Now

    Show More Show Less
    36 mins
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