Episodes

  • Episode 162: How Do You Ask Someone to Donate a Kidney? A Guide to Living Kidney Donation Conversations

    Episode 162: How Do You Ask Someone to Donate a Kidney? A Guide to Living Kidney Donation Conversations
    Jun 22 2026
    How do you ask someone to donate a kidney? For many people living with kidney failure, this can be one of the most difficult and emotional conversations they will ever face. Fear of rejection, concerns about damaging relationships, feelings of guilt and uncertainty about where to begin can prevent people from exploring living kidney donation as an option. In this episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Jen Lumsdaine, Lead Nurse for Living Donation. Jen previously worked as a Living Donor Transplant Coordinator in Edinburgh, completed a PhD examining the quality-of-life impact of living kidney donation for donors and recipients, and has worked to improve equitable access to living donor transplantation across Scotland. Together they discuss: 💚 How to prepare emotionally before talking about living kidney donation 💚 Whether you should ask directly or raise awareness more generally 💚 How to keep the conversation open without putting pressure on others 💚 What to do if someone says no 💚 How to protect important relationships during the transplant journey 💚 Common misconceptions about living kidney donation 💚 Why every potential donor undergoes an independent assessment process 💚 The support available for donors and recipients 💚 Where to find trusted information and resources Whether you’re waiting for a kidney transplant, supporting a loved one, considering becoming a living donor or simply want to learn more, this episode offers compassionate, practical guidance from one of the UK’s leading experts in living donation. A special thank you to Jen and NHS Blood and Transplant for helping to make this episode possible. 🎧 Listen now and share with someone who may benefit from this important conversation. Follow Diary of a Kidney Warrior: 📸 Instagram: @diaryofakidneywarrior 📘 Facebook: Diary of a Kidney Warrior 🐦 Twitter: @diaryofakidneywarrior 🎵 TikTok: @diaryofakidneywarrior 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow the Podcast on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Become a living donor - NHS Organ Donation https://www.organdonation.nhs.uk/become-a-living-donor/ Kidney Care UK 💻 Website: www.kidneycarekuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org For more information about GOLD (Gift of Living Donation) Website: www.giftoflivingdonation.co.uk Instagram: @giftoflivingdonation Twitter: @delaidowu Email: info@giftoflivingdonation.co.uk Robert Dangoor Partnership | Give a Kidney | Kidney Donation | Live Kidney Donor https://www.giveakidney.org/considering-donation/how-do-i-donate/robert-dangoor-partnership/ Donate A Kidney | Kidney Donation UK | Make Your Mark https://www.donateakidney.co.uk/ Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyTransplant #LivingKidneyDonation #KidneyFailure #KidneyDisease #CKD #OrganDonation #TransplantJourney #KidneyPatient #NHSBloodAndTransplant #LivingDonation #KidneyHealth #RenalCare
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    31 mins
  • Episode 161: From Palliative Care to Purpose: Rebecca’s Journey Through Kidney Failure, Dialysis & Transplant Loss

    Episode 161: From Palliative Care to Purpose: Rebecca’s Journey Through Kidney Failure, Dialysis & Transplant Loss
    Jun 8 2026
    In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Rebecca Griffiths, who shares her extraordinary journey through kidney failure, dialysis, kidney transplantation and transplant loss. Rebecca’s story is one of resilience, determination and hope. After gaining approximately 25kg of fluid in a matter of days and requiring emergency treatment to drain fluid from around her heart, she found herself facing kidney failure without the support of a renal team. What followed was a life-changing journey that included dialysis, a kidney transplant, the devastating loss of that transplant and the challenge of starting again. In this episode, Rebecca discusses: 💚 Her diagnosis and rapid decline in kidney function 💚 Gaining 25kg of fluid in just one week 💚 Having fluid drained from around her heart 💚 Being sent home under palliative care 💚 Starting dialysis and adapting to a new way of life 💚 Receiving a kidney transplant 💚 The emotional impact of transplant failure 💚 Returning to dialysis and rebuilding her confidence 💚 Speaking in Parliament to advocate for kidney patients 💚 Finding purpose, strength and hope despite adversity 💚 Why life is not over on dialysis Rebecca’s story is a powerful reminder that even in life’s darkest moments, hope remains possible and that a meaningful life can still be lived despite kidney disease. 🎧 Listen now and be inspired by a remarkable Kidney Warrior who refused to give up. If you enjoyed this episode, please: ✅ Follow Diary of a Kidney Warrior Podcast ✅ Leave a rating and review ✅ Share this episode with family, friends and healthcare professionals ✅ Help us raise awareness of Chronic Kidney Disease (CKD), dialysis, transplantation and organ donation Medical Terms Explained eGFR — a blood test score for how well your kidneys filter. A healthy result is around 90 or above. Rebecca's was 5. Tessio line — a soft tube placed in the chest to connect you to a dialysis machine. Uremia — a dangerous build-up of waste in the blood when the kidneys can't filter it out. TPN — nutrition fed directly into a vein when you're too unwell to eat. Renal nutcracker syndrome — a rare condition where a vein near the kidney gets compressed, causing pain and damage. SPK (Simultaneous Pancreas and Kidney transplant) — receiving a new pancreas and kidney in the same operation, often offered to people with type 1 diabetes. ICU — Intensive Care Unit, where the most seriously ill patients are monitored closely after major surgery. HDU — High Dependency Unit, a step down from intensive care for close monitoring during recovery. Biopsy — taking a tiny sample of tissue to check how the transplanted kidney is working. Anti-rejection drugs — medicines that stop the body's immune system from attacking a transplanted organ. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Rebecca 📸Instagram: www.instagram.com/Rebecca.c.griffiths 📘Facebook: www.facebook.com/Rebecca Griffiths Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyWarrior #KidneyDisease #CKD #ChronicKidneyDisease #KidneyFailure #Dialysis #Haemodialysis #KidneyTransplant #TransplantJourney #TransplantFailure #OrganDonation #RenalPatient #KidneyHealth #PatientStory #...
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    47 mins
  • Episode 160: From Childhood Kidney Disease To Three Transplants | Johanna’s Kidney Warrior Story

    Episode 160: From Childhood Kidney Disease To Three Transplants | Johanna’s Kidney Warrior Story
    May 25 2026
    Welcome to another episode of Diary of a Kidney Warrior Podcast. In this powerful Kidney Warrior Story episode, host Dee Moore is joined by Johanna, who shares her lifelong journey living with Chronic Kidney Disease (CKD). Diagnosed as a young child after years of unexplained symptoms, Johanna opens up about growing up with kidney disease, navigating dialysis, experiencing transplant loss, and undergoing multiple kidney transplants. She speaks honestly about the physical and emotional realities of living with CKD for decades, including the uncertainty that comes with transplantation and the challenges of returning to dialysis. Johanna also shares the impact kidney disease has had on her mental wellbeing, family life, pregnancy, identity, and future plans. Throughout the conversation, she highlights the importance of resilience, support, advocacy, and finding joy in life despite the ongoing challenges of chronic illness. This episode is an honest and deeply moving insight into the realities of long-term kidney disease and the strength it takes to keep moving forward through every stage of the journey. In this episode, Johanna discusses: Being diagnosed with kidney disease as a childGrowing up with CKDThe symptoms that led to diagnosisStarting dialysisReceiving her first kidney transplantThe emotional impact of transplant lossReturning to dialysisUndergoing further kidney transplantsPregnancy after transplantationThe uncertainty of living with CKDMental health and emotional resilienceFinding hope whilst living with chronic illness If you are living with kidney disease, supporting someone who is, or want to better understand the realities of CKD, this episode is not to be missed. 🎧 Listen now and join the conversation. Until next time, take care and choose to live. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Johanna 📸Instagram: @mrsjohannabridges Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #KidneyDisease #CKD #KidneyTransplant #Dialysis #ChronicIllness #KidneyWarrior #TransplantJourney #KidneyFailure #KidneyHealthPodcast #DiaryOfAKidneyWarriorPodcast
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    1 hr and 4 mins
  • Episode 159: She Donated Her Kidney to Save Her Sister | Lynsey’s Living Donor Story

    Episode 159: She Donated Her Kidney to Save Her Sister | Lynsey’s Living Donor Story
    May 11 2026
    In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Lynsey, living kidney donor and sister to Carla, whose story listeners heard in the previous episode. This conversation explores the other side of kidney transplantation: the perspective of the person who makes the life-changing decision to donate. Lynsey shares the emotional reality of watching her sister become seriously unwell, the moment she realised something was wrong, and the journey towards becoming a living donor. Together, Dee and Lynsey discuss family, fear, love, guilt, hope, and the extraordinary bond between sisters. This deeply moving episode shines a light on living kidney donation, the impact of kidney disease on families, and the incredible gift of life that living donors provide. Topics discussed include: • Recognising that something was seriously wrong • Watching a loved one face kidney failure • The emotional impact of living donation • Family dynamics during chronic illness • Testing and preparing to become a donor • Recovery after kidney donation • Life after transplant • The importance of raising awareness about living kidney donation If you or someone you love is navigating kidney disease, dialysis, transplant, or considering living donation, this episode offers insight, honesty, and hope. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r For more information about living kidney donation and support services: Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org NHS Blood & Transplant: Website: www.organdonation.nhs.uk Twitter: NHS Blood & Transplant: @NHSBT NHS Organ Donation: @NHSOrganDonor Facebook: www.facebook.com/nhsorgandonor Instagram: NHS Organ Donation: @nhsorgandonor YouTube: www.youtube.com/user/nhsorgandonation/channels For Further Information Visit: National Black, Asian, Mixed Race and Minority Ethnic Transplant Alliance Website: www.nbta-uk.org.uk/ GOLD (Gift of Living Donation) Website: www.giftoflivingdonation.co.uk Instagram: @giftoflivingdonation Twitter: @delaidowu Email: info@giftoflivingdonation.co.uk Give a Kidney Charity Website: www.giveakidney.or Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyTransplant #LivingDonation #LivingKidneyDonor #KidneyDisease #KidneyFailure #OrganDonation #TransplantJourney #KidneyWarrior #ChronicIllness #Dialysis #KidneyHealth #OrganDonationAwareness
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    54 mins
  • Episode 158: Stage 5 Kidney Failure Without Warning: Carla’s Dialysis to Transplant Journey

    Episode 158: Stage 5 Kidney Failure Without Warning: Carla’s Dialysis to Transplant Journey
    Apr 27 2026
    Carla shares how she was diagnosed with stage 5 kidney failure without warning, leading to dialysis and ultimately a kidney transplant. This episode explores missed signs, sudden diagnosis, and the reality of living through kidney failure. In this episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Carla — a kidney warrior and former mental health nurse — about her experience of being diagnosed with stage 5 kidney failure without warning. After earlier test results showed declining kidney function, Carla did not receive follow-up — and later found herself sitting in front of a consultant being told her kidneys were functioning at just 12%. What followed was a sudden transition into dialysis, a challenging and emotional journey through treatment, and ultimately, a kidney transplant. Carla shares her story with honesty and insight — from the shock of diagnosis, to navigating dialysis access and setbacks, to the mental and emotional toll of living with kidney failure. This episode is a powerful reminder of how kidney disease can progress silently, and the importance of listening to your body, asking questions, and advocating for your health. 🔹 Key Topics Covered Stage 5 kidney failure diagnosisKidney disease progression and missed signsDialysis treatment and access challengesEmotional impact of kidney failureKidney transplant journeyPatient experience and advocacy If this episode resonated with you, please share it with someone who may benefit from hearing Carla’s story. Follow Diary of a Kidney Warrior Podcast so you never miss an episode — and join the Diary of a Kidney Warrior family for updates, support, and community. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. kidney failurestage 5 kidney failurekidney diseasedialysiskidney transplantchronic kidney diseaserenal failuredialysis patienttransplant journeykidney healthpatient storyhealth podcastmedical podcastchronic illness
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    47 mins
  • Episode 157: From Emergency Dialysis to Marathon Finish Line: Cam’s Kidney Warrior Story

    Episode 157: From Emergency Dialysis to Marathon Finish Line: Cam’s Kidney Warrior Story
    Apr 13 2026
    What does the difference a year make? Less than a year ago, Cam was in hospital — so unwell that he didn’t want his children to see him. Now… he’s preparing to run a marathon and attempt a world record. In this powerful episode of Diary of a Kidney Warrior Podcast, Cam shares his journey from a seemingly minor ear infection… to crashing into emergency dialysis with no warning, no preparation, and his life turned upside down overnight. This is a story about shock, survival, and what it really takes to rebuild your life after a diagnosis you never saw coming. 💚 IN THIS EPISODE, WE DISCUSS: The early symptoms that were missed — and how everything escalatedThe reality of starting dialysis suddenlyThe emotional impact on family, especially childrenAdjusting to life with kidney failureFinding purpose and motivation after diagnosisTraining for a marathon whilst on dialysisAttempting a world record to raise awarenessWhy hope is still possible — even in the hardest moments 🎥 WATCH ON YOUTUBE (2-PART SERIES) This conversation is also available as a 2-part visual episode on YouTube. 👉🏽👉 Part 1 https://youtu.be/7dGYoHE0xrY. and 👉🏽👉Part 2 https://youtu.be/AmyoG49k2-M include the full video experience, additional context, and the journey in full. 💬 WHY THIS EPISODE MATTERS Cam’s story is a reminder that kidney disease can happen suddenly — and without warning. But it is also a powerful example of resilience, determination, and choosing to move forward… even when life changes overnight. If you are on dialysis, awaiting transplant, or supporting someone who is — this episode is for you. 🤝 SUPPORT CAM Support Cam’s World Record Marathon—Sponsor His Run! Kidney Care UK: Manchester Marathon 2026 Follow Cam on Instagram https://www.instagram.com/dialysisdasher?igsh=MWI0ZHJnd2s4dHJqZQ%3D%3D&utm_source=qr 🔗 CONNECT WITH DIARY OF A KIDNEY WARRIOR 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org 💚 FINAL WORD If this episode encouraged you, please share it — because someone out there needs to hear this story. And as always, Until next time, take care and choose to live. 💚 Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. kidney disease, dialysis, kidney failure, marathon runner, chronic illness, transplant journey, kidney warrior, patient story, resilience, CKD, haemodialysis, fitness and chronic illness, UK kidney patient, health podcast, inspirational story, marathon world record attempt, Kidney Care UK, kidney awareness, Diary of a Kidney Warrior Podcast
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    1 hr and 5 mins
  • Episode 156: Diagnosed with PKD at 10 | Living with Hereditary Kidney Disease (CKD Story)

    Episode 156: Diagnosed with PKD at 10 | Living with Hereditary Kidney Disease (CKD Story)
    Mar 30 2026

    What is it like to be diagnosed with polycystic kidney disease (PKD) at just 10 years old—and to know it runs through your family?

    In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Natasja about her lived experience of PKD, a hereditary kidney condition that has affected multiple generations of her family.

    From her great-grandmother to her mother and beyond, kidney disease is not just part of Natasja’s story, it’s part of her family history.

    In this honest and deeply personal conversation, Natasja shares what it’s like growing up with chronic kidney disease (CKD), navigating the emotional and physical realities of a lifelong condition, and facing serious complications along the way.

    In this episode, we cover:

    • What polycystic kidney disease (PKD) is

    • Being diagnosed with kidney disease at a young age

    • The impact of hereditary kidney disease across generations

    • Living with chronic kidney disease (CKD)

    • Navigating serious health complications

    • Finding strength through lived experience

    ⚠️ Content note: This episode includes discussion of serious complications related to kidney disease that some listeners may find difficult.

    This episode is a powerful reminder that behind every diagnosis is a real story, one of resilience, strength, and lived experience.

    Follow Diary of a Kidney Warrior:

    📸Instagram: www.instagram.com/diaryofakidneywarrior

    📘Facebook: www.facebook.com/diaryofakidneywarrior

    🐦Twitter (X): www.twitter.com/diaryofakidneyw

    🎵Tik Tok: @diaryofakidneywarrior

    📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

    🔵 BlueSky: @diaryofakidneyw.bsky.social

    💌 Join the Diary of a Kidney Warrior Family Mailing List

    Get updates on new episodes, vlogs, newsletters, and more!

    👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

    📲 Follow Diary of a Kidney Warrior on WhatsApp

    Stay updated with new episodes and exclusive content!

    👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

    Kidney Care UK

    💻 Website: www.kidneycareuk.org

    📧 info@kidneycareuk.org

    📞Tel: 01420 541 424

    📘Facebook: www.facebook.com/kidneycareuk.org

    📷Instagram: @kidneycareuk

    🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social

    📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

    📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

    Disclaimer:

    The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

    #PKD #PolycysticKidneyDisease #CKD #KidneyDisease #KidneyWarrior #ChronicIllness #HealthPodcast #PatientStory #KidneyHealth #HereditaryDisease #DiaryofaKidneyWarriorPodcast

    pkd, polycystic kidney disease, ckd, kidney disease, hereditary kidney disease, kidney health, chronic illness, patient story, kidney warrior, health podcast
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    52 mins
  • A Personal Update: My GLP-1 Journey & How to Stay Connected

    A Personal Update: My GLP-1 Journey & How to Stay Connected
    Mar 25 2026

    Hi Kidney Warriors and friends, Dee Moore here!

    I wanted to share a personal update with you.

    Alongside the recent podcast episodes on weight and GLP-1, I’ve also shared a vlog on YouTube where I talk more openly about my own experience and how this connects to my kidney transplant journey.

    📺 The vlog is available to watch on YouTube:

    https://youtu.be/RAa5ipo8b6k

    If you’re not already connected, you can also:

    Follow Diary of a Kidney Warrior:

    📸Instagram: www.instagram.com/diaryofakidneywarrior

    📘Facebook: www.facebook.com/diaryofakidneywarrior

    🐦Twitter (X): www.twitter.com/diaryofakidneyw

    🎵Tik Tok: @diaryofakidneywarrior

    📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

    🔵 BlueSky: @diaryofakidneyw.bsky.social

    💌 Join the (free) Diary of a Kidney Warrior Family Mailing List

    Get updates on new episodes, vlogs, newsletters, and more!

    👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

    📲 Follow Diary of a Kidney Warrior on WhatsApp (free)

    Stay updated with new episodes and exclusive content!

    👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

    If you found this helpful, you can also watch/ listen to the recent episodes on weight, dialysis, transplant eligibility and GLP-1.

    Episode 155: GLP-1 Medications, Weight Loss & Kidney Transplant Eligibility | Beyond The Scale (Part 2)

    https://kidneycareuk.org/get-support/podcast/beyond-the-scale-glp-1-medications-weight-loss-and-kidney-transplant-eligibility/

    Episode 154: Weight, Dialysis & Kidney Transplant Eligibility | Beyond The Scale (Part 1):

    https://kidneycareuk.org/get-support/podcast/beyond-the-scale-weight-dialysis-and-kidney-transplant-eligibility-part-1/

    ⚠️ Disclaimer:

    This vlog is a personal update and is not part of the Diary of a Kidney Warrior Podcast partnership content.

    This content is shared for awareness and educational purposes only and is not medical advice. Please speak to your healthcare team for guidance specific to you.

    Until next time, take care and choose to live.

    #diaryofakidneywarriorpodcast #kidneydisease #ckd #kidneytransplant #dialysis #glp1 #weightlossjourney #patientstory #kidneyhealth

    kidney health podcast, kidney disease, chronic kidney disease, ckd, kidney transplant, dialysis, glp1, weight loss, transplant eligibility, patient story, kidney patient, uk health podcast, renal health, kidney awareness, health podcast
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