EPISODE 3 - More Than Flexible: The ABCs of EDS and Identity
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EPISODE 3 - More Than Flexible: The ABCs of EDS and Identity
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Summary
Ehlers-Danlos Syndrome is often described with one word: flexible. But living with EDS is far more complex than hypermobility.
In this episode of Bend, Snap and Chat, Cristie and Drake share their lived experiences navigating Ehlers-Danlos Syndrome and the many ways it affects the body. From joint instability to nervous system dysfunction, they talk about how connective tissue disorders can impact nearly every system, every cell, and every part of daily life.
They also explore the common “trifecta” many patients experience - EDS, POTS, and MCAS - and what it’s like learning to live in a body that doesn’t always follow the rules.
In this episode we talk about:
• what Ehlers-Danlos Syndrome actually is
• how EDS affects multiple systems throughout the body
• the EDS, POTS, and MCAS “trifecta” many patients experience
• common misconceptions and diagnostic challenges
• the everyday realities of living with connective tissue disorders