In this episode of Ohio DD Talks, host Shari Cooper takes us inside one of the most energizing events of the year for Ohio's developmental disability advocates, the annual DD Awareness and Advocacy Day at the Capitol. Shari, who served as emcee for her 12th consecutive year, sits down with three guests who help make the day happen: Shannon Strow, Manager of Government Affairs for LMK Advocacy; Hunter Robinson, a lead advocate at the Ross County Board of DD; and Krystal Albright, advocate and community volunteer from Paulding County.

Together, they reflect on how the event has evolved over more than a decade, growing from two separate days into one powerful gathering of 500 advocates. They also share what this year's theme, "Power of Support," means to them personally. From meeting with state legislators to hearing Governor DeWine speak live for the first time, this episode captures why showing up at the Statehouse matters and what it feels like to be in a room full of people fighting for the same things.

Host: Shari Cooper

Guests: Shannon Strow, Hunter Robinson, Krystal Albright

Key Topics

The History of DD Awareness and Advocacy Day: Shannon shares how the event began over 10 years ago as two separate events and how LMK Advocacy has helped shape and grow it over the last five years.

This Year's Theme: Power of Support: Hunter and Krystal reflect on what "Power of Support" means in their own lives, from job coaching and HPC support to transportation services and the networks of people who make their goals possible.

Taking It to the Legislators: Hunter shares his experience meeting with State Representative Mark Johnson to discuss sidewalk and bus stop accessibility in his community and what it feels like to advocate face to face for real, local change.

Governor DeWine at the Capitol: For many attendees, this was the first time seeing the Governor in person. Guests reflect on his message around DSP pay, universal changing stations, and making Ohio more accessible statewide.

Storytelling on the Main Stage: Shannon highlights the event's storytelling segment, where advocates Hunter, Christina, and Hope shared personal stories of support, as the most meaningful moment of the day. For Hunter, it was a dream years in the making.

An Invitation to First-Time Advocates: Shannon and Hunter encourage anyone thinking about attending to take the leap. The event includes a walkthrough of the legislative meeting process and is designed to help new advocates build confidence.

Why It Matters

This episode is a reminder that advocacy is not just something that happens in policy rooms. It happens when real people show up and share their stories. DD Awareness and Advocacy Day gives self-advocates, families, and providers a direct line to the lawmakers who shape the systems they rely on every day. Whether it is fighting for better DSP pay, more accessible sidewalks, or bringing the Special Olympics closer to home, this event shows what it looks like when the developmental disability community shows up together. If you have ever thought about adding your voice, this episode will convince you that now is the time.

Resources and Links

• Ohio DD Council Website
• LMK Advocacy
• Learn about DD Awareness and Advocacy Day

In this episode of Ohio DD Talks, host Shari Cooper sits down with Jan Goings, director of strategy and partnerships of Starfire, and the Cail family—Grace, her father Jeff, and her mother Kathleen—to discuss the inaugural Inclusion Seekers Summit held in October 2025 at the Cincinnati Art Museum. Organized by Starfire with support from the Ohio DD Council and Interact for Health, the Summit drew over 250 attendees from 17 states and 80+ organizations to address loneliness and build genuine belonging in communities across Ohio and beyond.

Grace's story is at the heart of this episode. A docent and researcher at the Museum Center, advocate, and passionate fan of Sabrina Carpenter, Grace shares what it meant to be at an event where people asked about her interests, not her disability. Her family reflects on what it truly takes to build a full, connected life.

Host: Shari Cooper, Ohio Developmental Disability Council Ambassador Guests: Jan Goings (Director of Strategy and Partnerships, Starfire), Grace Cail, Jeff Cail, Kathleen Cail

Key Topics

What Is the Inclusion Seekers Summit? Jan Goings explains how the Summit grew out of years of community-building work at Starfire. With Ohio DD Council support, they hosted this first large-scale, one-day event to bring a diverse group together around reducing loneliness and building real community connections.

Dr. Vivek Murphy and the Epidemic of Loneliness Former U.S. Surgeon General Dr. Vivek Murphy delivered the keynote. Jeff Cail shares how Murphy's accessible style and actionable "take five" framework resonated with attendees and inspired real behavior change.

Grace's Experience: Being Seen Beyond Disability Grace reflects on meeting people who were curious about her passions—women's rights, history, musical theater, and Sabrina Carpenter—rather than her disability. Her family shares how community connection has grown her confidence and amplified her voice.

Storytelling as Community Building The Summit was designed for active participation, not passive listening. Breakout sessions, shared meals, and real-world stories—like Operation Hello's neighborhood events in Middletown—gave attendees both inspiration and new connections to take home.

Reaching Beyond the "Choir" Kathleen highlights why Starfire deliberately invited the general public—not just disability organizations—because Grace's world and the broader community need to intersect around shared interests, not just shared labels.

What Comes Next Starfire is exploring smaller regional summits, story hours, and continued trainings to keep the momentum going and help people take bite-sized steps toward connection every day.

Why It Matters

Loneliness is a public health crisis, and people with developmental disabilities feel it deeply. The Inclusion Seekers Summit is a reminder that the answer isn't more programs: it's community. When people with disabilities are seen as whole people with interests, passions, and gifts, they participate in and shape community. Grace's story shows what's possible when a young woman is surrounded by people who value her voice.

Resources and Links

• Starfire Website
• Ohio DD Council Website
• Learn more about the Inclusion Seekers Summit
• Learn about the ODDC Community Ambassador Program

Thanks for listening—don't forget to subscribe and share this episode!

In this special reunion episode of Ohio DD Talks, we celebrate five incredible years of the podcast and the closing of the Ohio DD Council’s five-year state plan. Host Shari Cooper is joined by DD Council legends and former hosts—Nate Turner, Michael Denlinger, and Marci Straughter—as they reflect on the podcast’s origins, their personal journeys, and what makes this show so special.

In Part 2, Shari chats with current DD Council Chair Jennifer Kucera, who highlights some of the most impactful grant projects from the last five years, including Dollars and Sense, DB101 Ohio, and the FLAP program. They also discuss the Council’s unique Ambassador Program, which gives self-advocates the platform to share their stories and spotlight community experiences across Ohio.

Whether you're a longtime listener or new to the show, this episode is full of energy, insight, and appreciation for the power of storytelling in the disability community.

Host: Shari Cooper, Ohio Developmental Disability Council Ambassador

Guests: Nate Turner, Michael Denlinger, Marci Straughter, Jennifer Kucera

Key Topics

The Evolution of DD Talks
A look back at how the podcast began, its purpose, and how it has grown over five years.

Passing the Mic: Reflections from Former Hosts
Former hosts Nate Turner, Michael Denlinger, and Marci Straughter share how they shaped the podcast and what made their hosting styles unique.

Spotlight on DD Council-Funded Projects
Jennifer Kucera highlights impactful grants such as Dollars and Sense, DB101 Ohio, and the FLAP program that supported self-determination, financial literacy, and policy advocacy.

Ambassador Program Successes
Shari and Jennifer discuss the Council’s innovative Ambassador Program, which empowers self-advocates to share stories from their local communities.

Hopes for the Future of the Podcast
Guests reflect on what they want DD Talks to become—from growing the audience to reaching national platforms.

Why It Matters

This episode honors five years of disability-led storytelling, leadership, and impact. It shows how people with developmental disabilities are not just participants but creators, organizers, and innovators. From celebrating self-advocate-led media to highlighting systemic changes made possible through DD Council grants, this reunion captures the value of community-driven narratives. It reminds us that when disabled people have platforms to speak, teach, and lead—entire systems become more inclusive, more responsive, and more human.

Resources and Links:

• Ohio DD Council Website
• Apply to be on the Council: Council Application Page
• DB101 Ohio Website
• Listen to the DB101 Ohio DD Talks episode on Buzzsprout
• Learn about the ODDC Community Ambassador Program
• Submit your story for the podcast

Do you have a story to share? The Ohio DD Council is always looking for individuals to feature on Ohio DD Talks. Submit your story!

Thanks for listening—don’t forget to subscribe and share this episode!

Getting quality healthcare that actually meets your needs can be a real challenge—especially for people with intellectual and developmental disabilities (IDD). In this Part 2 episode, we follow up on our 2024 interview with StationMD by bringing you the latest updates from their team.

Dr. Deven Unadkat, President and Chief Medical Officer, joins host Shari Cooper to share how StationMD has expanded its services to include mental health support, psychological testing, and on-call nurse coverage. You'll hear how this telehealth model is transforming care access and outcomes for people with IDD—while also saving money and reducing stress for families, providers, and public programs.

Host:
Shari Cooper, Ohio Developmental Disability Council Ambassador

Guest:
Dr. Deven Unadkat, President and Chief Medical Officer, StationMD

Key Topics

What Is StationMD?
A 24/7 telehealth platform built specifically for people with intellectual and developmental disabilities.

The Origin Story
How repeated ER visits inspired an emergency physician to co-found a more responsive, disability-centered model of care.

New Services
Expansion into telepsychiatry, psychological testing, and on-call nursing to better support individuals, families, and direct support professionals.

Ohio Medicaid Waiver Access
StationMD is now a covered service under the Ohio Medicaid waiver, making it easier than ever to access these supports at no out-of-pocket cost.

Systemic Barriers
Why most medical schools still don’t adequately prepare doctors to treat people with disabilities—and how that’s starting to shift.

Cultural Change in Healthcare
How disability-specific telehealth is building empathy and changing how hospitals treat patients with IDD.

Why This Matters

Access to healthcare shouldn't depend on your ability to navigate complicated systems. StationMD is removing barriers, reducing unnecessary ER visits, and helping people with IDD get care that respects their time, rights, and dignity.

Resources & Links

• Learn more about StationMD
• Contact StationMD
• Ohio Developmental Disabilities Council
• Submit your story for the podcast

Do you have a story to share? The Ohio DD Council is always looking for individuals to feature on DD Talks. Submit your story!

Thanks for listening—don’t forget to subscribe and share this episode!

In this episode of Ohio DD Talks, we continue the conversation on accessibility and inclusion with Changing Spaces: Part 2. Host Shari Cooper is joined by experts and advocates to discuss the incredible progress made in the Changing Spaces movement, which is working to ensure that people with disabilities have access to Universal Changing Tables in public spaces across Ohio. Since our last discussion, significant strides have been made, with a growing number of these essential facilities being installed in key locations, improving accessibility and quality of life for individuals and families.

Shari reconnects with Jennifer Corcoran and Kim Kirkwood, Co-Leaders of Changing Spaces Ohio, who provide an update on the movement’s achievements, including partnerships with local governments and businesses. They are joined by Chase Watts from the Delaware County Board of D.D., Rita Price from the Franklin County Board of D.D., and Karen Brown from the Union County Board of D.D., who share insights on how county boards have contributed to the expansion of Universal Changing Tables throughout the state.

Listeners will hear about the challenges faced, the victories won, and the advocacy efforts that continue to drive this initiative forward. With dozens of Universal Changing Tables now installed in public buildings, airports, parks, and other locations, Ohio is setting a powerful example for accessibility nationwide.

Host:
Shari Cooper, Ohio Developmental Disabilities Council Ambassador

Guests:
Jennifer Corcoran, Co-Leader of Changing Spaces Ohio
Kim Kirkwood, Co-Leader of Changing Spaces Ohio
Chase Watts, Delaware County Board of D.D.
Rita Price, Franklin County Board of D.D.
Karen Brown, Union County Board of D.D.

Key Topics:

Understanding Accessibility Challenges:

• The real-world impact of inaccessible spaces on people with disabilities.
• How Universal Changing Tables provide dignity and independence for individuals and caregivers.

Progress in the Changing Spaces Movement:

• The growing number of installations across Ohio.
• Partnerships with county boards, businesses, and local governments to increase accessibility.

Success Stories & Room for Improvement:

• Stories from families and individuals who have benefited from new installations.
• The next steps needed to ensure even greater accessibility statewide.

Resources:

• Learn more about Changing Spaces Ohio: Ohio Chapter | ChangingSpacesUSA

Have a story to share? The Ohio DD Council is looking for individuals to feature on the podcast. Submit your story!

Thank you for tuning in. Don’t forget to subscribe and share this episode!

Navigating Social Security and Medicaid benefits can be overwhelming, especially when considering employment. In this episode, we dive into the Ohio Disability Benefits 101 (DB101) Integration Project and how it is helping people with disabilities understand their financial and employment options.

Nicholas Love joins the conversation to share insights about DB101, employment myths, and the importance of financial literacy. He challenges a common question—"How much money can I make and not lose my benefits?"—by flipping the script: "How much money do you need to live the life you want?"

Host:

Shari Cooper, Ohio Developmental Disability Council Ambassador

Guest:

Nicholas Love, Director of Community Inclusion at the World Institute on Disability (WID)

Key Topics

• What is DB101? A website offering clear, accurate information about Social Security benefits, healthcare, and employment.
• Employment Myths Debunking fears about losing benefits when working and highlighting available work incentives.
• Ohio’s Role Why Ohio, as an Employment First state, is leading the way in disability employment initiatives.
• Financial Education & Resources How DB101 and the Ohio Developmental Disabilities (DD) Council are providing tools like financial literacy training and ABLE accounts.
• Competitive Integrated Employment The push to eliminate subminimum wages and ensure fair pay for workers with disabilities.
• Outreach & Training How WID and DB101 are reaching individuals, families, and providers to educate them on disability benefits and employment.

Why This Matters

Employment is not charity—it is about equity and opportunity. DB101 is helping thousands of people each month make informed decisions about work and benefits, proving that financial stability and employment go hand in hand.

Resources & Links

• Learn more about DB101 Ohio
• Watch the DB101 informational videos (make sure to select the Ohio-specific videos)
• Ohio Developmental Disabilities Council

Have a story to share? The Ohio DD Council is looking for individuals to feature on the podcast. Submit your story!

Thank you for tuning in. Don’t forget to subscribe and share this episode!

In this inspiring episode of Ohio DD Talks, Shari Cooper chats with Josh Young, Director of Operations for the Ohio Network for Innovation (ONI). Together, they delve into the importance of supported decision-making, its role as a less restrictive alternative to guardianship, and ONI's creative approaches to empowering individuals with disabilities to make their own life decisions. From the development of a unique role-playing game to strategic planning for self-advocacy groups, Josh shares practical insights into fostering self-determination and improving access for people with disabilities.

Host:
Shari Cooper, Ohio Developmental Disability Council Ambassador

Guest:
Josh Young, Director of Operations at the Ohio Network for Innovation

Key Topics:

• Josh explains ONI's mission to meet unmet needs in the disability field, including affordable housing, employment, and decision-making supports.
• The Evolution of Supported Decision-Making: Josh highlights how ONI helps individuals make informed decisions by understanding their options and the risks involved.
• The Global Movement of Supported Decision-Making: Learn how supported decision-making has become a worldwide initiative and why Ohio is helping lead the way.
• Practical Examples of Decision-Making Support: Josh provides real-life scenarios, from informal supports to structured tools like supported decision-making agreements.
• Creative Tools for Education: Discover ONI's innovative "Dungeons and Dragons and Decisions" game, which teaches decision-making skills in a fun, safe environment.
• Strategic Planning for Self-Advocacy Groups: Learn how ONI helps groups refocus their mission, values, and goals for greater impact.
• Personal Stories and Perspectives: Josh shares his journey of self-discovery as an autistic individual with ADHD and how it shaped his passion for self-determination and advocacy.

Resources Mentioned:

• Visit ONI's website for more information on services, training, and tools: www.OhioNetworkForInnovation.com
• Explore the service catalog to learn about their offerings, including "Dungeons and Dragons and Decisions."
• Share your story for a chance to be featured on the podcast by filling out this survey

Connect with Shari and ONI:

• Follow Shari Cooper for more conversations on disability advocacy and empowerment.
• Reach out to ONI for partnerships or to learn more about their work.

We want to hear from you!

The Ohio DD Council is collecting stories to highlight on our podcast and would like to hear yours. You might even be invited to appear on the series! Interested? Complete a short online form: Ohio DD Talks - Share Your Story

In this episode of Ohio DD Talks: Ambassador Edition, host Shari Cooper guides a conversation about the My Life. My Story. Storytelling Workshop, which is helping people with developmental disabilities in Ohio share their experiences in their own unique ways; and helping to build connection, empowerment, and inclusion.

Shari is joined by Dr. Becca Monteleone, Assistant Professor of Disability Studies at the University of Toledo, and Alicia Hopkins, an advocate, artist, and workshop participant. Together, they discuss how the workshops have become a platform for people with developmental disabilities to share their voices, challenge misconceptions, and build confidence.

Dr. Monteleone shares how her background in inclusive theater inspired her to create the program, which has reached rural and underserved communities across Ohio. Alicia opens up about how the workshop helped her grow as a storyteller and advance her career goals, including promoting her book, Audacity to Speak.

The guests also highlight the diversity of stories told in the workshops—from personal successes to everyday challenges—and the meaningful connections formed among participants. The workshops provide a space where participants can express themselves in ways that honor their individual communication styles through words, art, or assistive technology.

Host:
Shari Cooper, Ohio Developmental Disability Council Ambassador

Guests:

• Dr. Becca Monteleone: Assistant Professor of Disability Studies at the University of Toledo and facilitator of the My Life. My Story. Storytelling Workshop.
• Alicia Hopkins: Advocate, artist, author of Audacity to Speak, and workshop participant.

Key Topics:

The My Life. My Story. Storytelling Workshop:

• A one-day storytelling program that empowers individuals with developmental disabilities to share their stories.
• Stories range from personal challenges to community advocacy, offering participants a platform to connect with others and develop their voices.

The Impact on Ohio’s Communities:

• Workshops have been held in rural and underserved counties, creating opportunities for connection and expression.
• Participants present their stories in public spaces, fostering awareness and inclusivity in their communities.

Advancing Advocacy Through Stories:

• Alicia Hopkins shares how the workshop helped her promote her advocacy efforts, including her book Audacity to Speak, which highlights her personal experiences and disability rights issues.
• Dr. Monteleone emphasizes the importance of amplifying the voices of people with disabilities and challenging societal misconceptions.

Diversity and Accessibility in Storytelling:

• Participants are encouraged to share their stories using the communication methods that work best for them, including art, assistive devices, or collaborative interviews.
• The program demonstrates how storytelling can be accessible to all, creating a space for everyone’s voice to be heard.

Resources:

• Learn more about the My Life. My Story. Storytelling Workshop: Ohio DD Council
• Purchase Alicia Hopkins’ book, Audacity to Speak: Poetry Is Life Publishing
• Watch recorded performances from the workshops
• Share your story with the Ohio DD Council!