Years of not being heard. How to advocate for yourself with Chronic Illness with Tracy Jallow
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About this listen
Work with George: Want to regain control over your pain? Book a free 30-minute consultation (Remote or Edinburgh-based): https://www.paincoaching.co.uk/consultation
"As a healthcare provider, the best instrument you have is your ears. If you really listen to your patients and take on board what they're saying, they give you the clues. You are the detective. You have the medical background to put the pieces of the jigsaw puzzle together which is the only way I eventually got my diagnosis. We had to fit every piece together to make the full picture of what was going on."
In the second episode of The Conditions for Recovery Podcast, George speaks with Tracy Jallow, an expert patient who lived undiagnosed with Antiphospholipid Syndrome (APS) for nearly two decades. Moving away from the passive patient model, they discuss the limitations of a healthcare system that isn’t always built for complexity and the transformative power of reclaiming your agency.
In this episode, we explore:
- Meaningful Clinical Relationships: Why holistic collaboration, validation and genuine listening are the only ways to solve complex puzzles.
- Finding Purpose: How to navigate a life with chronic illness by moving from grief to self advocate.
- Self-Advocacy: The responsibility we have to ourselves to find our own personal way forward within the system.
- Living Well Alongside Symptoms: Finding the specific tools and mindset shifts needed to enrich life.
- Community & Participation: The vital role of finding your people, rediscovering joy and staying connected to your values.
Whether you are living with pain or a clinician looking for a deeper understanding of the patient experience, this conversation offers a huge amount of insight and a hopeful perspective on what it means to recover.
Connect with the Show:
Full Episode Links: www.paincoaching.co.uk/links
Follow on Instagram/TikTok: @SpecialistPainPhysio
Connect with Tracy:
LinkedIn: Tracy Jallow