In this deeply reflective episode of Through Myeloma Eyes, Solomon Alexis opens up about one of the most complex emotional landscapes of living with cancer: survivor’s guilt.

Through powerful personal stories — from losing his younger brother at 21, to the heartbreaking loss of his niece during the pandemic, to the passing of friends and others walking the same myeloma road — Solomon explores the quiet question many survivors carry:

“Why am I still here… when they aren’t?”

#myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice

In this episode of Through Myeloma Eyes, Solomon explores what patient voice really means — beyond slogans, beyond tick‑box exercises, and beyond the margins of clinical documents.

Drawing on years of involvement in research design, clinical trial reviews, and patient advisory groups, Solomon highlights a simple truth: Data shows what is happening… but lived experience explains what it means.

From the hidden realities behind quality‑of‑life scores to the honesty found in patient forums, this episode uncovers why patient insight isn’t a “nice to have” — it’s essential. Solomon shares how patients bring context, clarity, and credibility to science, ensuring research answers the questions that truly matter.

This is an episode for clinicians, researchers, patients, and anyone navigating both worlds. A reminder that patient voice isn’t noise in the system — it’s wisdom at the table.

In this episode, the host shares his experience starting daratumumab (D) as the next step in long-term multiple myeloma care. He describe the decision-making conversation with his medical team, the treatment day with pre-medications and monitoring, and the emotional rhythm of living with an incurable cancer.

Rather than dramatic moments, the episode emphasises continuity: diagnosis, treatment, stability, and adjustment. Solomon encourages listeners to ask questions, take time with decisions, and adapt as the journey evolves.