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Rare Care Podcast

Rare Care Podcast

By: Rare Care Podcast
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 Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved Hygiene & Healthy Living Science
Episodes
  • 218: An Interview With Donna Shipp on Her IgG4-RD Patient Journey

    218: An Interview With Donna Shipp on Her IgG4-RD Patient Journey
    Mar 31 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Shipp, a Boston-area nurse who was misdiagnosed with cancer, underwent surgery and later realized she had IgG4-RD. She now advocates on behalf of others with this rare disease.
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    14 mins
  • 217: An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness

    217: An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness
    Mar 30 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Abby Bronson, vice president of patient advocacy at Edgewise Therapeutics, about a new effort to raise awareness of Becker muscular dystrophy as a disease distinct from Duchenne muscular dystrophy.
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    12 mins
  • 216: An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation

    216: An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation
    Mar 23 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Allison Moore, founder and CEO of the Hereditary Neuropathy Foundation. Moore was the winner of the Muscular Dystrophy Association's 2026 Donavon Decker Legacy Award for Community Impact in Research.
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    10 mins
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