• 218: An Interview With Donna Shipp on Her IgG4-RD Patient Journey
    Mar 31 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Shipp, a Boston-area nurse who was misdiagnosed with cancer, underwent surgery and later realized she had IgG4-RD. She now advocates on behalf of others with this rare disease.

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    14 mins
  • 217: An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness
    Mar 30 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Abby Bronson, vice president of patient advocacy at Edgewise Therapeutics, about a new effort to raise awareness of Becker muscular dystrophy as a disease distinct from Duchenne muscular dystrophy.

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    12 mins
  • 216: An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation
    Mar 23 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Allison Moore, founder and CEO of the Hereditary Neuropathy Foundation. Moore was the winner of the Muscular Dystrophy Association's 2026 Donavon Decker Legacy Award for Community Impact in Research.

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    10 mins
  • 215: An Interview With John Crowley, President and CEO of the Biotechnology Innovation Organization
    Mar 17 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John Crowley, president and CEO of the Biotechnology Innovation Organization (BIO), founder of Amicus Therapeutics, and father of 2 children with Pompe disease.

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    14 mins
  • 214: An Interview With Dr. Hyun Kim, Director of the University of Minnesota's Interstitial Lung Disease Program
    Mar 2 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Hyun Kim, MD, professor of medicine and director of the University of Minnesota's Interstitial Lung Disease Program, about idiopathic pulmonary fibrosis.

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    13 mins
  • 213: An Interview With Andrea Wilson-Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular Carcinoma
    Feb 24 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Wilson-Woods, founder of Blue Faery: The Adrienne Wilson Liver Cancer Association—a nonprofit that advocates for patients with hepatocellular carcinoma.

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    13 mins
  • 212: An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson Disease
    Feb 17 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Shilsky, MD, of the Yale School of Medicine, on potential therapies for Wilson disease.

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    11 mins
  • 211: An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma
    Feb 11 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yen Chen, PhD, of the University of Michigan, on the subject of cognitive dysfunction or "brain fog" among people with scleroderma.

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    12 mins